Community-guided policy

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Translational Science Benefits

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Clinical

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Community

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Economic

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Policy

Policy & legislative benefits (Community-centered policy)

Definition

Community involved in creating policies that impact them. Community perspectives are clear, apparent, and drivers of the policymaking process. Ensures that all communities, particularly those historically insufficiently catered to populations, have a voice in the policymaking process. Examples include Community Health Improvement Plans (CHIPs) and Affordable Care Act (ACA).

Rationale

Community-guided policy ensures that the voices of those most affected by policies are central to the decision-making process. By actively involving communities, especially those insufficiently catered to, in the creation of policies, this approach leads to more relevant, fair, and effective solutions. It fosters trust and ensures that policies reflect the needs and priorities of all people, promoting fairness and reducing differences.

Guidance

Advice from authors on searching for information:

Use search terms like “community-led policymaking,” “fairness in policy design,” or “participatory governance” to find relevant sources. Look beyond academic databases to include reports from nonprofits, local governments, and advocacy groups. Prioritize sources that center community voices, such as testimonies, co-authored reports, or participatory research.

Resources & Data

Organizations, repositories, websites, and other sources where you can find more information:

Data Limitations

Challenges you may encounter while searching for information:

Searching for information on community involvement in policymaking can be challenging due to inconsistent terminology like “community-led,” “participatory,” or “co-produced” policies. Much of the most relevant content is found in grey literature—such as local government reports or advocacy group publications—which may not be indexed in academic databases. Additionally, examples of authentic community leadership may be underreported or undocumented, especially in historically underserved communities.

Publications

Articles, books, and other publications in translational science using the indicator: